潜水钟与蝴蝶 (1997)

《潜水钟与蝴蝶》（法语：Le Scaphandre et le Papillon）是由法国《ELLE杂志》总编辑让-多米尼克·鲍比罹患闭锁症候群后所作的传记，书中描述他在严重中风并罹患闭锁症候群后的生活以及中风前的生活。于1997年3月7日出版，它获得极佳评价，在出版第一天售出25,000本，一周内达到150,000本，并持续在欧洲成为畅销书，目前销售量已超过一百万本。繁体中文版于1997年10月28日由邱瑞銮翻译、台湾大块文化公司出版，简体中文版则在2007年由南海出版公司引进。后来此书被导演朱利安·施纳贝尔改编成同名电影，由马修·阿马立克主演，并获得第65届金球奖最佳外语片奖等多个奖项。

内容简介

让-多米尼克·鲍比原是法国时尚杂志的总编辑。他在44岁的年底突然脑干中风，并昏迷了20多天，苏醒后发觉全身不能动弹，惟有左眼眼皮能够跳动，以便与人沟通。他在医院中回想过去自己的生活，又感慨自己现时的身体状况，于是命人根据他左眼眼皮的指引，写成一本关于自己的回忆录。多米尼克在《潜水钟与蝴蝶》问世的第二天离世。

目录

西那希露台

观光客

守护天使

另一个巧合

幸运日

植物人

二十比一

打野鸭

礼拜天

香港小姐

在格雷万蜡像馆

爱吹牛的人

《生命中的一天》

开学了

The Diving Bell and the Butterfly (original French title: Le Scaphandre et le Papillon) is a memoir by journalist Jean-Dominique Bauby. It describes his life before and after a massive stroke left him with locked-in syndrome.

The French edition of the book was published on March 7, 1997. It sold the first 25,000 copies on the day of publication, reaching 150,000 in a week. It went on to become a number one bestseller across Europe. Its total sales are now in the millions.

Plot summary

On December 8, 1995, Bauby, the editor-in-chief of French Elle magazine, suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings, but physically paralyzed with what is known as locked-in syndrome, with the only exception some movement in his head and eyes. Further, his right eye had to be sewn up because of irritation.

Bauby wrote the entire book by blinking his left eyelid, which took him two months working 3 hours a day, 7 days a week. Using partner assisted scanning, a transcriber repeatedly recited a French language frequency-ordered alphabet (E, S, A, R, I, N, T, U, L, etc.), until Bauby blinked to choose the next letter. The book took Bauby about 200,000 blinks to write at an average of approximately two minutes per word.

The book also chronicles everyday events for a person with locked-in syndrome. These events include playing at the beach with his family, getting a bath, and meeting visitors while in hospital at Berck-sur-Mer. On March 9, 1997, two days after the book was published, Bauby died of pneumonia.

Adaptations

In 1997, Jean-Jacques Beineix directed a 27-minute television documentary, "Assigné à résidence" (released on DVD in the U.S. as "Locked-in Syndrome" with English subtitles), that captured Bauby in his paralyzed state. He also explored as the process of composing the book.

Artist/director Julian Schnabel released a feature-film adaptation of the book in 2007, starring Mathieu Amalric as Bauby. The film was nominated for several international awards and won best director that year at the Cannes Film Festival.

In 2019, The Dallas Opera was awarded a National Endowment for the Arts grant to commission The Diving Bell and the Butterfly, an opera based on Le Scaphandre et le Papillon by Jean-Dominique Bauby. It was composed by Joby Talbot with a libretto by Gene Scheer. It premiered on November 3, 2023 after facing production delays due to the COVID-19 pandemic.